Showing posts with label hospital. Show all posts
Showing posts with label hospital. Show all posts

Sunday, 5 August 2018

Anniversary: five years on from hospital...

I will start this post with the same preface as the last three years "I have just written a 'status update' on my personal Facebook page to my friends and it occurred to me that I also want to say thank you to all of YOU. So I'm going to paste in what I wrote word-for-word on here. 

This isn't something I thought I would ever feel comfortable doing. I try to keep Life In Recovery and my personal life reasonably separate. Not because I am ashamed of the blog but because I think it works better if I don't use this as a platform to air my private life and that I use my past and present experiences in a constructive way to help others who may be struggling. That won't be changing.Keeping this blog, creating videos and posting little (or a lotta) bits on Twitter has been an absolutely wonderful experience. I hope to continue the work I have only just started and love interacting and discovering all of you 'out there.' This is why I felt it was relevant to post the message I sent to my friends and family to you all as well."

For the full effect (and for the new readers amongst you) you can read my first year anniversary post here, my second here, my third year here and my fourth year here.





It’s that time of year again – my unedited-stream-of-consciousness-brain-heart-soul-dump-thing to mark the anniversary of me leaving hospital. Yes, it’s 5th August and FIVE YEARS since being discharged. This anniversary post will probably be my last – those of you who have been subjected to five years of these will no doubt be relieved! I just feel that now is a good time to stop. I will always mark today in a small way, but I don’t feel the need to publicly prove how far I’ve come or keep a running reminder of so many years unwell now that I have moved so far forward in life. However, I do reserve the right to resurrect these in the future!! So…here goes…

I recently found some videos taken while in my last hospital. Two of me on a treadmill in a harness with my physiotherapist – getting used to walking and re-training my body. And a few from five years ago exactly: my discharge day – removing my name from my hospital room door and wiping down the whiteboard of my schedule of ward rounds, drug rounds and therapy appointments. I sat and watched myself grin, gurn, grimace and gnash my teeth. I watched me hobble and limp, hurt and labour, be happy and laugh, reach new heights (literally and figuratively) and achieve life goals. And if that’s not an accurate summary of those videos and also the last five years I don’t know what is.

I don’t think I’ve ever watched those videos before. And the overriding feeling was that I knew I was watching me; I remember being in the harness and I remember the day I was discharged, but that person is not the ‘me’ I am today. I barely recognise her – and that can be no bad thing. In last year’s post (or was it the one before..?) I wrote about now being me. Being myself fully. And moving so far from my unwell years that they had become a hazy and distant memory. Those twelve years are now like the mist in the early morning that gets burned off so easily by the first rays of the sun. And the last five years have been so full of sunshine that the mist has all but disappeared – leaving behind the memories, but not having an effect on the enjoyment of the day(s) to come.

In these posts, I like to look back and reflect on the past year and how far I have come. I like to take the opportunity to thank all those who have been with me; by my side, on the phone, in letters, in voice notes, in spirit, in laughter and in tears. Those thanks can never be put into words – and this measly post will never sum up how grateful and lucky I am to have had so much care, support and expertise over the past umpteen years. This year was the year I finally stopped going to hospital appointments, and that was a massive deal. I wrote a little something on Instagram about it – so I won’t repeat myself here. Safe to say it was an emotional day – one that I thought would never come; one that I wasn’t sure I wanted to come; but one that I worked so hard to reach. It meant saying goodbye to the doctor who had spent the last five years with me since my discharge – helping me find my feet (factually and figuratively) and being such an inexhaustible source of support. That was a bittersweet moment. And this year has been full of both the bitter and the sweet. Just as life – a ‘normal’ life, a full life ought to be. I wrote about that last year too I think; that when you live a full life, like a heartbeat – there are ups and downs – but that just shows you are alive. Not flatlining. Not like I had been. Not like I almost did.

This year I could talk about all the mind-blowing things I have done, the achievements that bizarrely keep coming and the over-eager excitement I have for the future. But for me, the most important part of this year – and the one that marks out this year especially – are the people who I have lived my life alongside. The people who I have let in, and who have let me in in return. These people – my friends and family – have made this year lovelier than I could have expected. And lovely is the word. Love-ly. Full of love in all its forms. And as I reach the point in this post where I talk about the thing that means the most – you – this is the point where the tears have come! So, as I sit here, with an old episode of Bake Off to keep me company – with tears streaming down my face – I want to say thank you. This year, despite all the incredible milestones and giant leaps forward in my work/uni/inner and outer life, things have not always been the easiest. There have been hard choices, heartbreak, headaches, hellos and hasta la vistas. I have moved on, moved forward and moved house. There have been tears, triumphs and tests. But through all the ups and downs, the times I thought I was falling to pieces, the “you’re not going to believe this…” and the “I did it” moments, the stresses and the successes - there was always someone to share those times with and always someone who wanted to share their moments with me too. Always someone to call, always someone to come over or visit, always someone to toast with/toast to/hug/laugh with/cry with/cry for. This last year I made a concerted effort to open up, share the bad and not just the good, say “this is me”, say “I like you”, carefully choose who I surround myself with and put a lot of time into my friends – and that has meant that my world has grown and ballooned, rather than narrowed and shrunk. I always thought I would be someone who valued ‘quality’ over ‘quantity’, meaning that I would have a smaller group of people to go through life with – but the quantity of quality I now have amazes me. If you are reading this, it is because you have added some quality to my life. And for that I am blessed. I am excited for the times to come and the lives we will lead. Even if our paths cross or diverge, lead away from each and then back – know that you make a difference to those around you. Know that you can have a positive impact on someone’s life so much more easily and effortlessly than you realise.

As I look back – on five years of healthy life, and twelve years of ill-health – I get flashes of faces, snippets of memories and twinges of pain. I know that there will be things that sometimes ache, things that will never completely heal but that will throb and tingle like old scars are wont to do, but I also know that I will never be beaten, never be alone, never be empty. I will always have the good memories as well as the bad. I will never unlearn the lessons that were taught to me in times of pain and darkness. I will live my life in the light – having known the blackness and never be afraid of the dark. And I will be me. Whether that is me being sad, being silly, being soppy, being sarcastic or being sensationally ecstatic.

Ronan Keating – that poet – sung, “Life is a rollercoaster – just gotta ride it”. But it’s not just about passively riding it. It’s about queuing to get in (waiting patiently or impatiently), measuring yourself up to make sure that this is the ride for you and you won’t fall out of the contraption, strapping yourself in, having your crew sitting beside you and in front of you and behind you – while you all scream and laugh, be afraid and be excited, get nervous and get sick. That’s what life is. It’s about living it out loud; in all it’s stomach-crunching, white-knuckle-inducing, when-will-it-begin, hair-flying, stop-start, loop-de-loop, “I want to get off” moments; it’s “Ooh, look at the view”,  “Actually, this is quite fun” and “Let’s do it again” times. That’s how life is a rollercoaster, and that’s how to ride it.

With love, thanks and countless other emotions


How to get in touch (and all that social media stuff)

Friday, 19 January 2018

Life In Recovery: No More Hospital

I started Life In Recovery with the sole aim to help people find hope and help if they (or their loved ones) were struggling with a long-term illness. I have been quite careful (and conscious) that I use my own experiences to that end, while not making this corner of the internet about me. That is why I have never said my name, nor shared a lot of intimate detail about my past, present or future life; I have always felt that would get in the way of providing help and hope, and it isn't something I find comfortable. However, there have been times when I have shared some of my more personal moments; for example, my anniversary posts (check out year one, year two, year three, and year four if you've missed them). This week marked another big moment in my recovery, and I wanted to share some of the words I wrote to friends and family members on here too - as you, and this blog, have also been part of the story.


"I bet you all thought you'd got away without another of these streams of consciousness until my next anniversary post in August, but no...
Today marks a big moment in my recovery; my last hospital appointment. I told my doctor I felt I was ready to stop attending appointments back in May, and it's taken eight months to get to this point. After years of meetings and treatment since my discharge as an inpatient in August 2013, to say that the relationship my doctor and I built during the past four years (a momentous period of my life) became a very important one, is an understatement. Finishing that chapter, and leaving that relationship, has been a big step; but one that I chose and feel ready for. Today I said goodbye to my doctor (with smiles, tears and big hugs), today I was able to try and thank my doctor, today I moved into a new phase of my life, today I reflected on how far I've come and today I was made to realise just how far that is. If you're reading this, it means you've been part of the story so far (even if it's just been in the last chapter, or the latest page), and it means you'll be part of the rest of my onward (and hospital-less) life. For that I thank you, and I'm so excited to see where life takes us all. It's been an incredibly emotional day; I've been through stacks of tissues...but now it's time to dry my eyes and look forward. Anyway, here ends the thought-vomit, it just leaves me to say how grateful I feel to be where I am in my life, and to say a very heartfelt and extra-special thank you to those of you who helped me get here - I couldn't have done it without you. "

This is how I felt on Wednesday afternoon. I do, however, want to write up how I am feeling now - a couple of days later - and also see how I feel in a couple of weeks, so there will be another blog post on that in the next month or so. 
Also, keep your eyes out for a separate piece coming very soon about how I said goodbye to that doctor/patient relationship and my thoughts on how important that relationship can be...

Have their been therapeutic relationships you've found hard to let go?

How to get in touch (and all that social media stuff)

Wednesday, 27 September 2017

Saturday, 5 August 2017

Anniversary: four years on from hospital...

I will start this post with the same preface as the last three years "I have just written a 'status update' on my personal Facebook page to my friends and it occurred to me that I also want to say thank you to all of YOU. So I'm going to paste in what I wrote word-for-word on here. 
This isn't something I thought I would ever feel comfortable doing. I try to keep Life In Recovery and my personal life reasonably separate. Not because I am ashamed of the blog but because I think it works better if I don't use this as a platform to air my private life and that I use my past and present experiences in a constructive way to help others who may be struggling. That won't be changing.Keeping this blog, creating videos and posting little (or a lotta) bits on Twitter has been an absolutely wonderful experience. I hope to continue the work I have only just started and love interacting and discovering all of you 'out there.' This is why I felt it was relevant to post the message I sent to my friends and family to you all as well."

For the full effect (and for the new readers amongst you) you can read my first year anniversary post here and my second here and my third year here.




"Today is 5th August - and you know what that means Facebook friends...Yes, it's time for another of my epically soppy anniversary stream of consciousness-es.

Today marks four years exactly since I was discharged from hospital. Four years. Only four. If I thought the last three of these anniversary posts were hard to write this year's is even more so. Normally I like to spend a bit of time reflecting on what the last years have held and how far I've come; I like to remember all the incredible, patient, loving and hard-working people who helped me get where I am today, and I like to try to sum it all up neatly here (which I won't do this year!)

While I won't ever forget the pain and the hard times; it's so important to remember the joy of that first walk in the park seeing a squirrel, or going out for lunch for the first time, or slicing a loaf of bread, or making someone a cup of tea.

This year I don't have the chance to devote half a day to reminiscences, like previous years. But I think that says it all really - last year's post talked about how I almost missed the anniversary - that it almost passed me by, because I was too busy living my life. And this year is the same.

The past year has been filled with new experiences, new faces and new challenges. I have done things I never dreamed I could or would do, I am doing things that seemed so far out of reach and I'm becoming the person I want to be. Even in my darkest moments, when I tried to find and cling onto the hope that I would get through things, I could never have imagined how much could happen in four years.

With a new year of challenges and lots of change can come difficulties, but the last year has had so many more highs than lows and as I've said before, bumps in the road are just part of living a full life. I want to live life like a heartbeat, with all its ups and downs; not flatlining.

I often think things will plateau and I am sure there will come a time where no massive shifts or great strides happen - and this may be the last year where I notice big progress. Yet in the last year I have grown: bolder, stronger, healthier, more unafraid, more silly, more hungry, less wary, more sure, braver. More me. And for the opportunity to do that, I can never put into words. I am incredibly lucky, incredibly grateful and incredibly hopeful.

Going into my fifth year out of hospital feels amazing. Very soon I will stop having my regular appointments, a decision I made before the summer and one that I think shows I must have confidence in both my health and my self.

So, as I try not to cry (again) and I prepare to celebrate someone else's anniversary and don my heels, I'm reminded that this time four years ago I was putting on a pair of high heels in my hospital room as I had been determined to walk out in style, having entered on a stretcher. Yes, then, I may have only just made it out of the front door before having to stop, but still...! Tonight I'll dance all night!

I will quote my post from the last two years, “To the friends and family who have seen up close the changes these past couple of years have brought and who've been there with a solid shoulder, a helping hand, a beaming smile or a thumbs up - thank you”. I couldn't have done this, or enjoyed myself so much without you.

Life. Is. Good."

Do you mark milestones and life anniversaries?

How to get in touch:

YouTube - http://t.co/CGZBkZnWU2
Twitter - http://www.twitter.com/Recovering_Life 
Blog - http://yourlifeinrecovery.blogspot.co...
Email - yourlifeinrecovery@gmail.com
Facebook - https://www.facebook.com/Recovering.Life

Friday, 5 August 2016

Anniversary - three years on from hospital...

So...it's 5th August and that means *drum roll* it's time for another emotional/personal post marking my (this time) THREE year anniversary after being discharged from hospital.

I will start this post with the same preface as the last two years "I have just written a 'status update' on my personal Facebook page to my friends and it occurred to me that I also want to say thank you to all of YOU. So I'm going to paste in what I wrote word-for-word on here. 
This isn't something I thought I would ever feel comfortable doing. I try to keep Life In Recovery and my personal life reasonably separate. Not because I am ashamed of the blog but because I think it works better if I don't use this as a platform to air my private life and that I use my past and present experiences in a constructive way to help others who may be struggling. That won't be changing.Keeping this blog, creating videos and posting little (or a lotta) bits on Twitter has been an absolutely wonderful experience. I hope to continue the work I have only just started and love interacting and discovering all of you 'out there.' This is why I felt it was relevant to post the message I sent to my friends and family to you all as well."

For the full effect (and for the new readers amongst you) you can read my first year anniversary post here and my second here.




Here we go:

"WARNING – another of my soppy anniversary posts (read: essays). Today is August 5th, and marks three years since I was discharged from hospital.
This year the anniversary feels quite a different beast to the last two years. It crept up on me, for a start. I completely forgot about it until I was on my way into work yesterday and panicked that I’d somehow missed it. Personally, I think this is a great sign; a sign that I am starting to feel more space between me and the years I spent unwell. A ‘healthy’ space. A space that means I feel I am not completely defined by a decade-plus of illness. A space that feels good.

This past year has been another roller-coaster of a ride. Yes, I still have to be careful. Yes, I’m still finding my way. No, I won’t forget what happened or pretend it didn’t. No, I won’t take things for granted. This year there have been tears and triumphs. Things to grieve over, and things to rejoice about. Things I have done for the first time, and things I have done for the last. There have been people I have said goodbye to, and many people I have met for the first time. We have worked, we have played, we have studied and we have lived. For all these things and so many more, I am grateful.

On this day, three years ago I woke with the knowledge that a new and exciting chapter of life was just beginning. Three years later, I woke up this morning with the same knowledge.

Sitting here typing this (fairly un-edited stream of consciousness) with tears running down my face – I am completely at a loss to express how much I (still) feel about the last few years and the time I was unwell. I have so many of you to thank. So many of you who helped me reach where I am today. So many who are helping me discover just how incredible and exhilarating life can be.

A year of milestones, surprises, new beginnings, goodbyes, change, love, laughter, tears, family, new and old friends. A year of growing, learning and maturing. A year you have all been part of. And for that I am very lucky.

I will quote my post from last year, “To the friends and family who have seen up close the changes these past couple of years have brought and who've been there with a solid shoulder, a helping hand, a beaming smile or a thumbs up - thank you”.

Life. Is. Good."

What anniversaries do you mark? Are you a fan of reflecting on milestones or key moments of your life?

How to get in touch:

YouTube - http://t.co/CGZBkZnWU2

Twitter - http://www.twitter.com/Recovering_Life

Blog - http://yourlifeinrecovery.blogspot.co.uk/

Email - yourlifeinrecovery@gmail.com

Facebook - https://www.facebook.com/Recovering.Life


Wednesday, 5 August 2015

Anniversary - two years on from hospital...

This time last year I uploaded a post that I had written on my personal Facebook page to mark the one year anniversary of leaving hospital. I wrote a pre-cursor to this saying:
"I have just written a 'status update' on my personal Facebook page to my friends and it occurred to me that I also want to say thank you to all of YOU. So I'm going to paste in what I wrote word-for-word on here. 
This isn't something I thought I would ever feel comfortable doing. I try to keep Life In Recovery and my personal life reasonably separate. Not because I am ashamed of the blog but because I think it works better if I don't use this as a platform to air my private life and that I use my past and present experiences in a constructive way to help others who may be struggling. That won't be changing.
Keeping this blog, creating videos and posting little (or a lotta) bits on Twitter has been an absolutely wonderful experience. I hope to continue the work I have only just started and love interacting and discovering all of you 'out there.' This is why I felt it was relevant to post the message I sent to my friends and family to you all as well."


You can read last years full post here in all it's gushy glory!

I am not going to re-word that pre-cursor for this year, as I think it sums up exactly how I feel now. Again, this is not something I would usually do (or feel comfortable with) but it does seem very appropriate and something I want to share on this platform. 

So, for a second year running, here goes...

"Some of you may know that today marks a significant anniversary for me. Today - August 5th - marks two years since I was discharged from hospital. (And no, don't worry...I'm not going to be doing this every year..!)
Last year I wrote about how thankful, amazed and appreciative I was to have a chance to live a happy and full life. Nothing about that has changed. Except maybe that I am more sure, more certain and more definite that that 'chance' is now more of a certainty - I am living, and will continue to live, that happy and full life thanks to so many people.
If I thought that first year out of hospital was an eventful and momentous one then I was unprepared for this year! I have no words left to describe how this second year has been. It has been indescribably *more* than I ever expected.
I don't want to bleat on about each individual milestone or experience...you were probably witness to a lot of those anyway! What I do want to say is that the last year was one of the best years of my life. That's not to say that it was perfect and it has had it's rocky patches, but that only makes the year all the more real and true. Those difficult times have taught me a lot, both about myself and others, and they have made the countless wonderful and overwhelmingly positive times so much more authentic. At times I have been unable to contain my excitement and happiness about everything that has happened this year. I have often had to pinch myself and I continue to be amazed and humbled by all the loveliness!
Just as I did last time, I want to thank you all for your friendship, support and for the shared experiences we have had together. I have met lots of amazing people this year who, along with the lovely people who read my post last year, have added so much to this year.
To the friends and family who have seen up close the changes these past couple of years have brought and who've been there with a solid shoulder, a helping hand, a beaming smile or a thumbs up - thank you.
I think the phrase 'wonderful and overwhelmingly positive' pretty much sums up the year. I'm so excited and curious to see what this next year will bring us all."

How to get in touch:

YouTube - http://t.co/CGZBkZnWU2

Twitter - http://www.twitter.com/Recovering_Life
Blog - http://yourlifeinrecovery.blogspot.co.uk/
Email - yourlifeinrecovery@gmail.com
Facebook - https://www.facebook.com/Recovering.Life

Tuesday, 5 August 2014

Anniversary - One year on from hospital....

I have just written a 'status update' on my personal Facebook page to my friends and it occurred to me that I also want to say thank you to all of YOU. So I'm going to paste in what I wrote word-for-word on here.
This isn't something I thought I would ever feel comfortable doing. I try to keep Life In Recovery and my personal life reasonably separate. Not because I am ashamed of the blog but because I think it works better if I don't use this as a platform to air my private life and that I use my past and present experiences in a constructive way to help others who may be struggling. That won't be changing.

Keeping this blog, creating videos and posting little (or a lotta) bits on Twitter has been an absolutely wonderful experience. I hope to continue the work I have only just started and love interacting and discovering all of you 'out there.' This is why I felt it was relevant to post the message I sent to my friends and family to you all as well.

So here goes...

I don't normally do this on FB but it's a handy way to reach a lot of you all at once!

Some of you will already be aware of the significance of today's date to me but for those who aren't...Today (August 5th) marks exactly one year since I was discharged from hospital!

Words can't express how wonderful and incredible the last year has been. To be able to be writing this at all is mind-blowing!

I can't say thank you enough to those of you who helped me through the tough (!) times for so many years. I know without a shadow of a doubt that I wouldn't be here today without you. Your ongoing friendship means the world to me.

To the friends I've met more recently I also wish to thank you hugely. Your support, understanding and most of all your inclusion of me in your lives has been so amazing and life-enhancing.

I thought about how I wanted to mark today and decided very quickly that I wanted to go back to the hospital I was last in. So today I am off to pay a visit to the unit I spent my last few inpatient months in. Taking along a HUGE home-baked carrot cake, lots of tissues and a sack full of gratitude and news! I'm going to spend a couple of hours seeing some of the doctors and nurses who have made such an impact in my life and I’ll also be able to tell them that properly face-to-face.

Going back today will also be a chance to reflect on and try to digest the enormity of the past year and just be able to reflect on how much has changed for the better. The past year has been full of firsts (and seconds and thirds…) and it's been a roller-coaster ride of epic proportions to say the least.

I wish I could convey to you all how much I appreciate and value your presence. Sharing this new chapter in my life and revelling in the real chance of a happy, healthy and full life is the best I can do to show this. I know how lucky I am to have such excellent family and friends.

Here's to another blockbuster of a year!

With love, thanks and amazement.


How to get in touch:

YouTube - http://t.co/CGZBkZnWU2
Twitter - http://www.twitter.com/Recovering_Life
Blog - http://yourlifeinrecovery.blogspot.co.uk/
Email - yourlifeinrecovery@gmail.com
Facebook - https://www.facebook.com/Recovering.Life

Thursday, 8 May 2014

Realities of Recovery: Navigating the sometimes treacherous waters of recovery

What is the best word to describe the opposite of illness? Health, wellness, being disease free are all great options to use. However, what if you’re not exactly ‘well’ and also not entirely ‘unwell’? I would imagine the words recovering, recuperating and healing might come to mind. But what does it really mean to experience them? Everybody knows what being well means and, unfortunately, many people also know what ill health involves however when you are going through a recovery process that can be months or years long it is harder to quantify. Obviously people’s experiences will all differ in many things but I'm going to try to cover some of the important things you may encounter if you are slowly regaining health after chronic illness. I felt moved to write this as I am experiencing exactly this phase and have come across many things that I didn't realise would be involved in recovery and many subtle elements that can all add up to make you feel overwhelmed, lost, tired, frustrated and a multitude of other unpleasant feelings that are not beneficial to overall good health.

·         Bruises – Six months on and I am still picking up bruises very easily. My guess would be that my body simply isn't used to going through the motions of everyday life yet. My knees and feet seem to always have bruises over them. Some people recommend rubbing arnica onto fresh bruises to speed up healing. I haven’t found a way to stop getting bruised (apart from never going near anything ever again!) but I think once my body has adjusted it won’t happen so much.

·         Forgetting to take your medication (for people who self-administer) – I found this happened to me for the first couple of weeks after I came out of hospital. When you’re an inpatient you have very set times for taking medication and a nurse will bring you them so there’s no chance of missing a dose. However once you’re home there’s usually no constant reminder. Obviously it’s very important to take anything you have been prescribed but I think it’s also important to take medication/supplements at the same time each day so your body can maintain it’s equilibrium more easily. Initially I set an alarm for each of the medicines I was taking (as I take them at different times throughout the day/night) and once I got into a good routine I stopped the alarm system and I haven’t missed a dose since! For those of you not so technologically minded then a note by the side of your bed may work or one by your kettle/toothbrush/front door may help to jog your memory.

·         Blisters and general feet issues – This has been one of those problems that I had never considered. I was bed-bound/bedridden for years and once I was starting to walk again I found that my feet couldn't tolerate shoes for a while. I wore slippers and then moved onto pumps and then trainers to help with support and comfort while getting used to walking again. Blisters and cuts were and still are a problem. When you haven’t walked for a long time your feet lose their calluses and hardened skin. Those of you who spend hours moisturising your feet to get them baby soft in the summer months will probably be wrinkling your noses in disgust but that tougher skin is there for a reason.  The parts of your feet that get the most pressure and wear need to be harder than the rest of the skin on your body. I found a good way of speeding up the calluses forming was to apply surgical spirit (rubbing alcohol) to the areas needed. The blisters are unavoidable but I have found that putting blister plasters over them is the most comfortable way to cushion them so that you don’t stop walking because of the discomfort. I tried many different types of plasters, bandages and surgical-grade dressings but the hands-down winner has to be Compeed blister plasters. The most important thing is to not stop walking when you are trying to relearn things like gait, pacing etc. Putting progress on hold while waiting for blisters to heal will only makes things more difficult and also the chances are you’ll immediately get another blister when you restart. I'm afraid it’s another case of grin and bear it or make that - slap a Compeed plaster on them and keep going!

·         Changes in the outside world and adjusting to life at a new level – this may seem like an obvious thing but I found that when I started getting out and about more I realised just how out of touch with the world I had become. There are so many seemingly inconsequential shifts that you become aware of that can create a feeling of disorientation and like you are in an unfamiliar environment that doesn't help you integrate. After my discharge from hospital I noticed things like plants that had been barely out of the ground when I had last been well were now great big trees, buildings had disappeared or been built, shops had moved locations. The list goes on! There were also the slightly more practical things that I had to get used to. I live in London and hadn't used an Oyster card before, being driven in a car at 50-70 mph felt like a white knuckle ride, getting back in touch with old friends, finding my way through the world of social media. I also found going into shops with their range of products quite overawing and I struggled to make decisions and choices. I am still finding that having not been in the loop for so many years in relation to current affairs, music, films, media news etc. can contribute to a sense of isolation or separation from your peers. Some of the new things are lovely like a lot of the ‘firsts’: first time you travel by yourself, first meal in a restaurant, first time you brush your teeth, first meal you prepare on your own, first bath…  However if you are feeling a little vulnerable (which you understandably would be) then all these adjustments can take their toll. I'm still experiencing firsts and attuning and adapting to my surroundings and new life but I think with time and the right people surrounding you that you will be able to absorb and digest all these changes and not feel disrupted or disturbed by them so much.

·         Rollercoaster of emotions – just because you may be feeling physically and/or mentally better doesn't always mean that you are going to be happy and smiling all the time. The process of recovery is a long, hard road and there are going to be bumps along the way. Please don’t be disheartened or concerned if you spend some time crying your eyes out or feeling very angry, hurt, guilty or confused. What I have found is that once your whole ‘self’ realises that things are looking up it’s almost as though something inside says “Okay, I can relax now, I don’t need to bottle all these emotions up anymore” Or in other words the barriers or walls you may have built up inside yourself so you could survive the worst times during your illness are starting to crumble. It may feel awful and you may feel as though you are lost at sea but in the end it will help you heal more completely if you can express and consciously feel those emotions.

·         Pacing activity and managing fatigue levels – I really think this deserves it’s own piece as it’s a tricky thing to address concisely because pacing is a very unique and particular thing to do and fatigue can be pretty subjective. However, from my experience I would say that recovering from anything be it an operation, a bereavement, a heart attack, a chronic condition like cancer needs care, self-love, understanding and a holistic approach. This includes pacing yourself and managing fatigue as best as you can. Somebody like an Occupational Therapist is very useful at helping guide you through increasing your activity and trying to assess fatigue states.

·         Family and friends - having enough support from friends, family, the community and the medical profession is vital and it’s sometimes the only thing that keeps you upright. You may be surprised by who is there to help you. I would like to address how best to access after-care in another article as it can be a huge problem.

·         Perspective - If your period of ill-health has lasted years or decades then how can you expect to attain good health in a matter of weeks or months? Keeping some perspective and remembering how far you have come is essential in recuperating as fully as you can.

These are just some of the points that I have learned on my journey towards health. I really hope that this article has helped you either during your recovery or to understand what someone else at this stage may be experiencing. I would like to put one last thing down in a hope that just one person reading this can learn where I have tripped up many times and that is that being kind to oneself, not getting frustrated and keeping expectations to a realistic level is essential when you are trying to navigate the rocky road to recovery. To anyone recovering from a long-term condition I salute you! Well done for getting through the worst intact and here’s to the light at the end of the tunnel. To anyone still in the depths of ill health I would like to say there is hope even if you think “Pah! What do they know?” there is hope. I believe in Cicero’s maxim ‘Where there’s life there’s hope.’

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